I challenge the Health Council of the Netherlands …

 

I challenge mr. Van Gool and mr. Severens, president and vicepresident of the Health Council of the Netherlands , and the MUPS[i]-party[ii] in the advisory committee on ME (Myalgic Encephalomyelitis) to present irrefutable scientific evidence that proves ME is a psychosomatic disorder.

I challenge mr. Van Gool and mr. Severens and the MUPS-party in the advisory committee on ME to present irrefutable scientific evidence that proves ME and CFS are the same disease.

I challenge mr. Van Gool and mr. Severens, and the MUPS-party in the advisory committee on ME to present irrefutable evidence that proves people with CFS form one homogeneous group with complaints that find their origine in the same underlying cause.

I challenge mr. Van Gool and mr. Severens, and the MUPS-party in the advisory committee on ME to present irrefutable evidence that proves Graded Exercise Therapy and Cognitive Behavioral Therapy are absolutely safe treatments for patients who suffer from ME.

I challenge mr. Van Gool and mr. Severens, and the MUPS-party in the advisory committee on ME to present irrefutable evidence that proves Graded Exercise Therapy and Cognitive Behavioral Therapy lead to an improvement in physical functioning, a higher level of daily physical activity and an increase of working capacity for people with ME, measured through objective instruments.

I challenge mr. Van Gool and mr. Severens (especially mr. Severens), and the MUPS-party in the advisory committee on ME to present irrefutable evidence that proves Graded Exercise Therapy and Cognitive Behavioral Therapy are cost efficient treatments for people with ME.

I challenge mr. Van Gool and mr. Severens, and the advisory committee on ME as a whole to present a protocol in advance that they will apply realising their advice to the government, including the criteria they will use to select the scientific evidence they will study and what evidence they will not study (with underlying motivation and explanation). This protocol should be published on the website in advance.

I challenge mr. Van Gool and mr. Severens, and the advisory committee on ME as a whole, including the MUPS-party,  to check and irrefutably prove that  the research and the analysis on the scientific evidence they have found, has been conducted in accordance to the scientific standards.

I challenge mr. Van Gool and mr. Severens, president and vicepresident of the Health Council of the Netherlands to act in conformity to the scrutiny the IOM has applied. Because they stated that quality needs to be added to the IOM report on ME, we expect at least a thorough and transparent investigation on conflicts of interest for members of the advisory committee (and themselves) applying their own recently presented code. They should expand the committee adding 5 extra experts with a completely  different background, we expect them to publish the names 20 days in advance on the website with the possibility to make an objection, we expect them to add 15 reviewers who will comment the text of the committee.

Lou Corsius, 9 juli 2016

[i] MUPS = Medically Unexplained Physical Symptoms

[ii] The MUPS-party in the advisory committee includes: prof. dr. Judith Rosmalen, dr. Hans Knoop, dr. Tim Olde Hartman, dr. Fons van Dijk.

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