Letter to leaders Nasem-HMD (former IOM)

Van: Lou Corsius
Verzonden: zaterdag 18 juni 2016 16:32
Aan: cbehney@nas.edu; cfrakes@nas.edu
Onderwerp: Questions about scrutiny IOM, claims posed by president of Health Council of the Netherlands

Dear madam, dear sir, the president of the Health Council of the Netherlands told members of the dutch parliament last Wednesday that the IOM report on ME is of insufficient quality. “We need to add quality” Since the presentation of this report, thousand new studies have been published en we need to select the relevant ones. He mentions the fact(?) that membership of IOM can be bought and that there is less scrutiny towards conflict of interest. He states that IOM has another businessmodel.

Can you please inform me whether professor Van Gool is right when he mentions the fact that membership can be bought and there is less scrutiny towards conflicts of interest? Can you tell me how it works?

To give you more information on the situation last Wednesday, I send you below a short article I wrote about it.

Yours sincerely

Lou Corsius, Msc Health Sciences

Father of a 25 year old daughter with ME for 15 years

 

No Fair Play Health Council of the Netherlands regarding ME?

The president prof.dr. Van Gool of the Health Council of the Netherlands and the vicepresident prof. dr. Severens informed  Members of Parliament on june 15, 2016 about the installation of the advisory committee on ME.

Van Gool calls ME an “issue” and he does not use the word disease. Doing so, he gives us an impression of the outcome of this committee even before the actual start.

The president of the Health Council of the Netherlands claims that the IOM report on ME is of insufficient quality. “We need to add quality” Since the presentation of this report, thousand new studies have been published en we need to select the relevant ones. (we don’t know which criteria the Council wil use) He mentions the fact(?) that membership of IOM can be bought and that there is less scrutiny towards conflict of interest. He states that IOM has another businessmodel (in Dutch: verdienmodel) (Van Gool and Severens chuckle).

The way they put this, one would get the impression that we cannot trust the advices and reports produced by the IOM.

On the website of the Health Council of The Netherlands however, we can find the statement: “The Council  furthermore maintains close ties with the American Institute Of Medicine.”  https://www.gezondheidsraad.nl/en/about-us/cooperation

Combining these two facts, I get utterly confused. Why does the Health Council maintain close ties with the IOM then? What is the reason they mention these close ties with emphasis when we cannot take IOM reports seriously?

Is it true that they maintain close ties? Or is this some kind of windowdressing?
From another angle: what is the reason the presidium of the Health Council feels the need to discredit the IOM? Was the IOM report on Myalgic Encephalomyelitis perhaps incovenient to them?
detail: Severens, the vicepresident,  is co-author of a reseach on cost-effectiviness of chronic fatigue treatment using CBT and GET. He did this together with Bleijenberg et.al.

 

All in all I get the impression that te Health Council of the Netherlands is not familiar with the expression “Fair Play”.

 

 

https://www.youtube.com/watch?v=P7mVjlO7onc&feature=em-upload_owner#action=share

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